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Athena Mondale,
Spiritual Consultant
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It will be a rare chance for people who have CHARGE and Usher syndrome to meet up in person with many others and with experts.
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Billie Kirgan,
Machinist
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Provides information on Usher syndrome, CHARGE and congenital rubella syn.
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Arthur Dawkins,
Astro-physicist
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Topics covered will include communication for children with CHARGE and an update on research into Usher Syndrome.
"It is clear that with the right support people with CHARGE and Usher syndrome can achieve far more than may originally be thought possible.
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Thomas Owens,
Police Officer
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Speakers are specialists in Usher syndrome and CHARGE, some of whom have either Usher syndrome or CHARGE themselves.
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Bob Greenberg,
Congressional Candidate
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CAUSE is managed by Sense in the UK and supported by six other European organisations who work with people with CHARGE and Usher Syndrome.
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