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Albert Graham,
Backyard Pool Drainer
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I was one of the first Marfan's patients to use hormone therapy treatment (millions of pills for about 4 or 5 years) and I am now a wonderful 5 ft 10 inches tall.
It was thought that I might have Marfan's as I showed the physical characteristics such as,long fingers and toes, being tall and skinny, as well as having extremely flexible joints.
Marfan syndrome patients are more susceptible to pneumothorax possibly due to a combination of abnormal connective tissue and by greater pleural pressure changes during breathing that result from the Marfan body habitus.
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Tony Howell,
Skateboarder
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If you've got marfans and live close to my call me and maybe we can hang out.
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Mike Enlow,
Internet Marketer
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He is on the National Marfans Website homepage, at We are currently working on making a web page for my husband.
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Chrissie Tanner,
Homemaker and Mom
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I am interested in finding other moms and families of young children with Marfans to coorespond with.
I had never met anyone with Marfan's until I was in Houston and then I met a mother and son who understood my fears of the opeation I was facing and this made me feel better about it.
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Arthur Dawkins,
Astro-physicist
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The Marfan syndrome is difficult to diagnose because there is no specific laboratory test for the condition.
Can some one please send me some information on symptoms of marfans and who should I have my son see for a complete evaluation.
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Sasha Prevette,
Kindergarten student
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I was diagnosed with Marfan's syndrome when I was thirteen years old, and I am now twenty-three and a mommy to a wonderful ten month old boy.
Elizabeth Shinaver Fort Smith Arkansas USA Hello i am a 24 year old mother diagnosed with Marfans syndrome as well as my 5 year old daughter has marfans.
I was diagnosed with marfans at 3 yrs of age but always thought it was the name for what was wrong with my eyes until reading an article in Good Housekeeping magazine at age 26!
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